Sen. Klobuchar to lead virtual conference on rare diseases
Published: Mar. 6, 2023 at 6:01 AM CST
WASHINGTON - Minnesota Senator Amy Klobuchar will be holding a virtual press conference today to bring more attention to Americans living with rare diseases.
Senator Klobuchar is the co-chair of the bipartisan Rare Disease Congressional Caucus.
She will be joined by Abbey Hauser, a rare disease advocate who lives with Classical Ehlers-Danlos Syndrome. Representatives from Mayo Clinic and Every-Life Foundation for Rare Diseases will also be involved in the conference.
There are over 10 thousand known rare diseases affecting 30 million Americans. Currently, fewer than 5 percent of rare diseases have a treatment approved by the U.S. Food and Drug Administration.
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